Welcome to the MRF Advocacy Coalition


[government] [media] [stories from Morgellons Sufferers

We are working diligently to accomplish the goals of the MRF-- raising awareness of Morgellons disease and increasing funding for research.  Please help us help you, your loved ones, or people whose lives have been affected by this illness. . Together, we can make a difference. 

Here are some of the ways you can help: 

1 - Register with the MRF.  This allows us to attempt to track the number of people who are suffering from the disease, learn what symptoms they have, and what parts of the country/world are most affected.  Congress pays attention to these numbers.  All information will be kept confidential.            Click here to register.

2 - This is most important.  Contact Congress -- and ask ten additional people to do the same.   Click here for a sample letter to Congress.   

3- Distribute brochures.  The MRF has prepared a brochure which describes the disease.  The goal is to disseminate information about this illness to the medical community and public.       Click here to download the brochure.  

4.  Volunteers:

Please consider volunteering your time to help us. We are trying to help over 12,000 families whose lives have been affected by this illness.  We are a grassroots organization with no paid officers, board members or staff.  We do have human compassion, drive and dedication.  But we need help!  We have a tremendous need for volunteers able to assist us in some critical need areas.

Some of our critical need areas are:
A.  Information technology: Computers, website.                                                                                                                                                       B.  Fundraising. We hope to raise funds to support the research grant proposals sent to us by scientists.  Funding will speed the discovery process.
C.  Printing brochures (we have no budget for this)
D.  Professionals capable of organizing support groups for patients devastated by this illness.
E.  Clinicians: If you are a physician, nurse, or other clinician and feel that you could help us in any way, please contact us.  We are in need of clinicians who would be willing to communicate with clinicians seeing Morgellons patients to establish an open communication network. Assistance of any kind by clinicians would be immensely appreciated by us.
 
Please email  Advocacy@Morgellons.org   if you can help in these or other ways.