Morgellons Research Foundation®

"Morgellons is an unexplained and debilitating condition that has emerged as a public health concern. Recently, the Centers for Disease Control and Prevention (CDC) has received an increased number of inquiries from the public, health care providers, public health officials, Congress, and the media regarding this condition." The current number of registered families: 14,720

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Morgellons Disease

Most individuals with Morgellons disease report disturbing crawling, stinging, and biting sensations, as well as non-healing skin lesions, which are associated with highly unusual structures.

1. What is Morgellons disease? ........... ......2. Where did the name "Morgellons" come from? 3. What is it like to have Morgellons disease? 4. What is the source of the skin lesions and fibers? 5. Could this be bio-terrorism? 6. Is there a cure? 7. Does anyone care? 8. What is the treatment? 9. Who suffers from Morgellons disease? 10. How is the CDC responding to this crisis? 11. How are physicians responding to this crisis? 12. How can I help? 13. How can I receive the latest news and developments in research?
Symptoms These structures can be described as fiber-like or filamentous, and are the most striking feature of this disease. In addition, patients report the presence of seed-like granules and black speck-like material associated with their skin. Fig 1. and Fig 2. below show Fibers emerging from a lesion on child's lip at 200x.
The Morgellons Research Foundation (MRF) has received registrations from people reporting this condition from all fifty U.S. states. The MRF has also received registrations from people reporting this condition from 45 other countries, most notably Canada, Australia, England, South Africa and the Netherlands.

The Morgellons Research Foundation (MRF) is a 501(c)3 non-profit organization established in 2002 in honor of a two-year-old child with an unknown illness, which his mother labeled “Morgellons disease”. The MRF is dedicated to raising awareness and research funding for this poorly understood illness, which can be disfiguring and disabling, and affects people of all age groups including an increasing number of children. The number of families currently registered with the MRF is believed to represent a fraction of the true number of affected families. The MRF fully supports the formal efforts by the CDC and Kaiser Permanente’s Northern California Division of Research to investigate Morgellons disease. The MRF will continue to financially assist the ongoing efforts of private research scientists who are dedicated to solving the mystery of this tragic illness. CDC Investigation: The Centers for Disease Control and Prevention in conjunction with Kaiser Permanente’s Northern California Division of Research held a national media telebriefing on January 16, 2008 announcing government efforts to investigate the cause of this illness. Follow this link for a transcript of the media telebriefing. According to the CDC: “Morgellons is an unexplained and debilitating condition that has emerged as a public health concern. Recently, the Centers for Disease Control and Prevention (CDC) has received an increased number of inquiries from the public, health care providers, public health officials, Congress, and the media regarding this condition. Persons who suffer from this condition report a range of coetaneous symptoms including crawling, biting and stinging sensations; granules, threads or black speck-like materials on or beneath the skin; and/or skin lesions (e.g., rashes or sores) and some sufferers also report systemic manifestations such as fatigue, mental confusion, short term memory loss, joint pain, and changes in vision”

In Loving Memory of Ken Cowles

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